Blog

 

Some people have the gift of storytelling; sharing their innermost thoughts and feelings that make us feel like they are speaking just to us.

These three women/bloggers/cancer survivors do just that. I hope that you will be touched… or even inspired by their words and experiences. We can learn so much by sharing our stories!

Lisa Bonchek Adams

Photo Credit: Lisa Adams – Twitter

Lisa Bonchek Adams is a stage IV breast cancer survivor. She is a wife, mother to three young children… and she is doing as much as she can for as long as she can.

I first learned about Lisa Adam’s tweets and blog when two controversial columns by Emma Keller (The Guardian) and Bill Keller (The New York Times) broke. I was intrigued to learn more about this woman who they portrayed as sharing too much about her terminal cancer experiences on social media; I have been hooked on her writings ever since! Through her tweets and blog, Lisa Adams shares her thoughts, feelings and experiences as they relate to her cancer diagnosis… and more. She allows her readers to enter her “cancer world” in such a deep and profound way. Each entry is written with passion, grace and love. She has the ability to make you think and feel in an open, honest and thoughtful way.  I find myself excited to read her latest post or tweet… her realness and insight are truly inspiring.

Follow Lisa Bonchek Adams:  Blog  |  Twitter  |  Facebook


Susan Gubar

Photo Credit: Indiana University, Bloomington

Susan Gubar is living with advanced ovarian cancer. She is a writer, feminist scholar and professor. I read her book, Memoir of a Debulked Woman, after a trusted friend’s recommendation; Susan’s book did not disappoint!

She also blogs regularly in The New York Times. Susan Gubar says out loud what many of us are thinking, feeling and experiencing… but may not always feel comfortable sharing. She gives her readers a “real” inside look as to what cancer can do to your body, mind and soul. She asks thought-provoking questions that leave her readers thinking and wanting for more.

Follow Susan Gubar:  Blog


Suleika Jaouad

Photo Credit: Anne Francey

Suleika Jaouad is an Emmy Award-winning New York Times Well columnist, cancer survivor and health advocate. Her blog and video series “Life, Interrupted” is captivating and inspiring. A while back, I found Suleika’s writings in The New York Times Health Section and have been hooked ever since!

On her website, she shares “I want to help you tackle life’s difficult moments with integrity, compassion and a healthy dose of humor and sass”…and she does just that!

Follow Suleika Jaouad:  Blog  |  Twitter  |  Facebook


Stephanie Stern, LCSW-C is an oncology social worker and the moderator of The MetaCancer Foundation’s Mosaic Online Support Community.

The MetaCancer Foundation provides information and resources focused on the unique psychological and emotional aspects of living with metastatic cancer. Mosaic is a free online support service for people living with metastatic cancer and their loved ones.

No Comments
 
 

couple-shadow-msTalking about sex is an uncomfortable topic for most of us on any given day…now throw cancer in the mix and the subject of sex rarely is discussed.

Sex is a natural feeling and act…and most often kept private. People seem to be more comfortable making jokes about sex rather than sharing their feelings and experiences about the sex they are having (or not having!). Many of us feel embarrassed and even unsure talking about this intimate subject.

Many of us (health professionals included) under-estimate the importance of sex and the impact cancer has on us and our intimate relationships.

If you or your partner/spouse have pain or fatigue (the list can go on and on), sex may be currently absent, but that doesn’t mean that we don’t have feelings about this.

If sex is challenging or even if just the thought of it is challenging, I want you to know that you are not alone. Talking about this very private part of your life can be helpful and validating…and we can learn a lot by sharing.

I look forward to hearing what you’re feeling, thinking and experiencing. This is a big topic and there is such much more to say. I’ll be back…

Warmly,

Stephanie


Stephanie Stern, LCSW-C is an oncology social worker and the moderator of The MetaCancer Foundation’s Mosaic Online Support Community.

The MetaCancer Foundation provides information and resources focused on the unique psychological and emotional aspects of living with metastatic cancer. Mosaic is a free online support service for people living with metastatic cancer and their loved ones.

 

No Comments
 
 

family

A Family’s Coping Tool

Recently I attended a conference for patients and caregivers given by the Leukemia and Lymphoma Society. During one of the breakout sessions, attendees were openly sharing what has (and has not!) been helpful to them since entering the “cancer world.”

One caregiver shared a helpful policy that he started after his father was diagnosed with lymphoma: no talking about cancer on the weekends. He found that he, his dad, and mom were always talking about his dad’s cancer in one way or another…and that cancer was now the only thing that they could connect on. While this caregiver understood why he and his family were so focused on the disease, he also realized that they were missing out on so many other important and interesting conversations. When his dad was feeling relatively good, he felt that it was important for the three of them to make time to discuss other topics; weekends seemed natural, this was a time when his dad did not have doctor’s appointments and/or treatments.

During his talk, he also shared that this was not always an easy task. He and his family had to take small steps at first. They started with 5:00 on Fridays through dinner time…and then through bedtime, with the goal being to get through Sunday night without talking about cancer.

This policy proved to be very helpful to this particular family. They were able to find time for other conversations, and even laughs…and through this process, they felt that they got to know each other a little better.

Is this something that you would be interested in trying? Why or why not? I look forward to hearing your thoughts on this coping tool and what has been helpful to you and/or your family.

Warmly,

Stephanie


Stephanie Stern, LCSW-C is an oncology social worker and the moderator of The MetaCancer Foundation’s Mosaic Online Support Community.

The MetaCancer Foundation provides information and resources focused on the unique psychological and emotional aspects of living with metastatic cancer. Mosaic is a free online support service for people living with metastatic cancer and their loved ones.

No Comments
...34567...